{"id":24377,"date":"2020-07-29T11:07:48","date_gmt":"2020-07-29T09:07:48","guid":{"rendered":"http:\/\/pulskasvakodnevnica.com\/?p=24377"},"modified":"2020-07-29T11:07:48","modified_gmt":"2020-07-29T09:07:48","slug":"povodom-medunarodnog-dana-gastroshize-pulski-rotor-osvijetlit-ce-se-zelenom-bojom","status":"publish","type":"post","link":"http:\/\/pulskasvakodnevnica.com\/index.php\/2020\/07\/29\/povodom-medunarodnog-dana-gastroshize-pulski-rotor-osvijetlit-ce-se-zelenom-bojom\/","title":{"rendered":"Povodom Me\u0111unarodnog dana gastroshize pulski rotor osvijetlit \u0107e se zelenom bojom"},"content":{"rendered":"\n<p>Najve\u0107i pulski rotor na ulazu u grad \u0107e u \u010detvrtak, 30. srpnja 2020. godine, biti osvijetljen zelenom bojom povodom Me\u0111unarodnog dana gastroshize (Gastroschisis Awareness Day).<\/p>\n\n\n\n<p>Uz Pulu i drugi gradovi u Hrvatskoj pridru\u017euju se obilje\u017eavanju &nbsp;tog dana koji se diljem svijeta odr\u017eava u spomen na datum kada je 2008. godine usred iznenadnih komplikacija zbog ove bolesti, nakon vrlo kratkog \u017eivota preminuo dje\u010dak Avery Rauen, \u010dija je majka osnovala fondaciju Avery\u2019s Angels Gastroschisis Foundation.<\/p>\n\n\n\n<p>Od svojih po\u010detaka do danas, organizacija Avery&#8217;s Angels je izrasla u veliku organizaciju koja okuplja ljude i djecu ro\u0111ene s gastroshizom te njihove roditelje, lije\u010dnike, medicinske sestre, razne stru\u010dnjake i znanstvenike. Fokus organizacije usmjeren je na pru\u017eanje moralne podr\u0161ke obiteljima pogo\u0111enim gastroshizom, pru\u017eanje informacija te istra\u017eivanje i podizanje svijesti o ovom stanju.<br \/><br \/>U 10-ak godina postojanja, podr\u0161ku je primilo 17 000 obitelji. Avery&#8217;s Angels danas broji preko 200 volontera diljem svijeta, uklju\u010duju\u0107i Sjedinjene Ameri\u010dke Dr\u017eave, Kanadu, Australiju, Ujedinjeno Kraljevstvo te jo\u0161 nekoliko europskih zemalja. Svi volonteri i predstavnici svojih zemalja su roditelji djece ro\u0111ene s gastroshizom ili lije\u010dnici, a cijeli tim se kontinuirano usavr\u0161ava kroz dodatne edukacije i treninge, sa svrhom postizanja \u010dim kvalitetnijeg pristupa i komunikacije obiteljima s kojima rade.<\/p>\n\n\n\n<p>Od 2019. godine, Avery&#8217;s Angels djeluje i u Hrvatskoj preko majke djeteta ro\u0111enog s gastroshizom u Vara\u017edinu 2014. godine, a ove godine \u0107e se po prvi puta Gastroschisis Awareness Day odr\u017eati i u Hrvatskoj u obliku osvjetljavanja hrvatskih znamenitosti zelenom bojom.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Najve\u0107i pulski rotor na ulazu u grad \u0107e u \u010detvrtak, 30. srpnja 2020. godine, biti osvijetljen zelenom bojom povodom Me\u0111unarodnog<\/p>\n","protected":false},"author":1,"featured_media":24378,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_mi_skip_tracking":false,"footnotes":""},"categories":[1,99],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.4 - 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