{"id":36613,"date":"2022-12-12T10:51:03","date_gmt":"2022-12-12T09:51:03","guid":{"rendered":"http:\/\/pulskasvakodnevnica.com\/?p=36613"},"modified":"2022-12-12T10:51:03","modified_gmt":"2022-12-12T09:51:03","slug":"malena-tija-ima-samo-jednu-zelju-da-se-moze-samostalno-kretati","status":"publish","type":"post","link":"http:\/\/pulskasvakodnevnica.com\/index.php\/2022\/12\/12\/malena-tija-ima-samo-jednu-zelju-da-se-moze-samostalno-kretati\/","title":{"rendered":"Malena Tija Ima samo jednu \u017eelju \u2013 da se mo\u017ee samostalno kretati!"},"content":{"rendered":"\n

Tia \u0160eri<\/strong> treba na\u0161u pomo\u0107! Malu, simboli\u010dnu, kakvu tko mo\u017ee\u2026 Ali treba nas jako, a vrijeme svaki dan curi i bli\u017ei se trenutak kada bi ova djevoj\u010dica trebala oti\u0107i na operaciju. Rije\u010d je o djevoj\u010dici koja svojim razvojem prkosi svim prognozama.<\/em><\/p>\n\n\n\n

Ro\u0111ena je s velikim deficitom mo\u017edanog tkiva<\/strong> i dijagnozama koje se gomilaju sa svakom novom razvojnom fazom. Unato\u010d tome, ona je veselo, razigrano malo bi\u0107e koje svih uveseljava svojim osmijehom svaki dan, od jutra do ve\u010deri. Kognitivno i intelektualno, Tia je ba\u0161 kao i svako drugo dijete njezinih godina<\/strong>, razigrana, \u017eeljna dru\u0161tva prijatelja vrti\u0107araca, trenutno najvi\u0161e zainteresirana za slova i brojeve te ne dozvoljava da joj motori\u010dka pote\u0161ko\u0107a, koja joj onemogu\u0107ava samostalno kretanje, stoji na putu ka cilju.<\/p>\n\n\n\n

\u201eNjezin razvoj velika je enigma za sve nas. Zahvalni smo svim doktorima, specijalistima, medicinskim sestrama, terapeutima, odgajateljima i nadasve dobrim ljudima u Klinici za dje\u010dje bolesti Zagreb, vrti\u0107u Razli\u010dak te posebice Poliklinici Glavi\u0107 koja svakodnevnim terapijama prati Tiu na njezinom putu ka samostalnom \u017eivotu ve\u0107 punih pet godina\u201c, kazala nam je majka Narcisa te obja\u0161njava kakav je proces pred cijelom obitelji.<\/p>\n\n\n\n

\u201ePreliminarni pregled, u bolnici Children\u2019s Hospital u St. Louis-u, koja je prepoznata kao nacionalni centar za spasti\u010dnu cerebralnu paralizu u USA, od strane dr. Parka potvr\u0111uje da je Tia kandidat za operativni zahvat Selective dorsal rhizotomy. Operacija podrazumijeva zahvat na kralje\u017enici, kojim \u0107e se, lai\u010dki re\u010deno, smanjiti hypertonus i spazam mi\u0161i\u0107a, koji joj onemogu\u0107avaju normalan pokret nogu, odnosno kora\u010danje, zatim slijedi ortopedski zahvat na ligamentima donjih ekstremiteta te svakodnevne fizikalne terapije, sve u bolnici u St. Louis-u u trajanju 30-40 dana. Kako je trenutno dosegla svoj motori\u010dki maksimum ovaj operativni zahvat \u0107e joj omogu\u0107iti da daljnjim terapijskim vje\u017ebanjem uz pomo\u0107 neurorobotike u Poliklinici Glavi\u0107 ostvari svoje prve samostalne korake i postane \u0161to samostalnija budu\u0107i da sljede\u0107e godine kre\u0107e u osnovnu \u0161kolu\u201c, otkriva nam Tijina majka.<\/p>\n\n\n\n

Operacija je planirana za o\u017eujak 2023. godine, a ukupan iznos koji je potrebno uplatiti 45 dana prije termina operacije jest 65.115,00 dolara plus putni tro\u0161kovi i tro\u0161kovi smje\u0161taja.<\/strong><\/p>\n\n\n\n

Obitelj je nedavno pokrenula kampanju na stranici Go Get Funding sa Tijinim profilom naziva ‘ZA TIJIN KORAK’. Na ovaj na\u010din mo\u017eete pomo\u0107i malenoj Tiji, a ako vam je zgodnija uplata na ra\u010dun ostavljamo vam ni\u017ee i Tijin \u017eiro ra\u010dun:<\/p>\n\n\n\n

\nhttps:\/\/gogetfunding.com\/za-tijin-korak-for-tias-step\/\n<\/div><\/figure>\n\n\n\n

Tia \u0160eri, Zagreba\u010dka banka: HR0523600003119183884<\/p>\n\n\n\n

Vi\u0161e o Tijinoj pri\u010di mo\u017eete saznati i njezinom Instagram profilu https:\/\/www.instagram.com\/tia.shery?r=nametag<\/a>   <\/p>\n","protected":false},"excerpt":{"rendered":"

Tia \u0160eri treba na\u0161u pomo\u0107! Malu, simboli\u010dnu, kakvu tko mo\u017ee\u2026 Ali treba nas jako, a vrijeme svaki dan curi i<\/p>\n","protected":false},"author":1,"featured_media":36614,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_mi_skip_tracking":false,"footnotes":""},"categories":[1],"tags":[],"yoast_head":"\nMalena Tija Ima samo jednu \u017eelju \u2013 da se mo\u017ee samostalno kretati! - Pulska Svakodnevnica<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/pulskasvakodnevnica.com\/index.php\/2022\/12\/12\/malena-tija-ima-samo-jednu-zelju-da-se-moze-samostalno-kretati\/\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Malena Tija Ima samo jednu \u017eelju \u2013 da se mo\u017ee samostalno kretati! - Pulska Svakodnevnica\" \/>\n<meta property=\"og:description\" content=\"Tia \u0160eri treba na\u0161u pomo\u0107! 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